I don't know one single person who shares this malady. In fact, its prevalence in the US is about 1 in half a million people. Tonight, however, I joined an internet 'chat' in-progress, for people with BD and very quickly felt affirmed and less lonely. In truth, there were less than 10 people involved in the 'chat' but those ten represented an amazing geography: one participant is from Greece; the moderator is from Northern Ireland; and several others are from the New York, Virginia, New Jersey and I think Wisconsin; and there were a few others whose location I didn't learn.
'Chat' participants were warm and welcoming. Not unlike what I have come to expect from the CLL Forum and CLLC Friends: generous, friendly, encouraging, intelligent. One of the interesting aspects of the nearly 2-hour online event was the voluntary translation going on. A woman from New Jersey was translating from English to Greek and Greek to English for the gentleman from Greece. This was not her job. She is one who shares Behcet's and I feel certain she joined the 'chat' for her own personal reason. Yet it was just done.
Because it was needed.
Because she was there and had the skills.